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336 pages. 9.00x6.00x0.84 inches. In Stock.

This is the story of how Walter rode his bicycle from Paris, France, to Istanbul, Turkey. Travelling over 4000 kilometres over 72 days was especially challenging because Walter has Cystic Fibrosis. This book is dedicated to the families of kids with Cystic Fibrosis. Part of all profits will go to CF causes.

For most people, a diagnosis of cystic fibrosis means the certainty of a life ended too soon. But for Isabel Stenzel Byrnes and Anabel Stenzel, twin girls with the disease, what began as a family’s stubborn determination grew into a miracle.The tragedy of CF has been touchingly recounted in such books as Frank Deford’s Alex: The Life of a Child, but The Power of Two is the first book to portray the symbiotic relationship of twins who share this life-threatening disease through adulthood.Isabel and Anabel tell of their lifelong struggle to pursue normal lives with cystic fibrosis while grappling with the realization that they will die young. Their story reflects the physical and emotional challenges of a particularly aggressive form of CF and is an honest and gripping portrayal of the daily struggle associated with long-term hospitalization, the impact of chronic illness on marriage and family, and the importance of a support network to continuing survival.Born in 1972, seventeen years before scientists discovered the genetic mutation that causes CF, the Stenzel twins endured the daily regimen of chest percussion, frequent doctor visits, and lengthy hospitalizations. But in the face of innumerable setbacks, their deep-seated dependence on each other allowed them to survive long enough to reap the benefits of the miraculous lung transplants that marked a turning point in their lives: “We have an old life—one of growing up with chronic illness—and anew life—one of opportunities and gifts we have never imagined before.” In this memoir, they pay tribute to the people who shaped their experience. These two remarkable sisters have much to teach about the power of perseverance—and about the ultimate power of hope.

258 pages. 7.70x5.00x0.90 inches. In Stock.

Jay Gironimi (rhymes with astronomy) is a man who can't eat and can't breathe. Can't Eat, Can't Breathe and Other Ways Cystic Fibrosis Has F#$%*d Me is not an inspirational story of triumph over adversity. But if you'd like to read a series of reflections on poop and mucus, it just might be the book for you.

Winner of the History of Science category of the Professional and Scholarly Publishing Awards given by the Association of American PublishersWhy do racial and ethnic controversies become attached, as they often do, to discussions of modern genetics? How do theories about genetic difference become entangled with political debates about cultural and group differences in America? Such issues are a conspicuous part of the histories of three hereditary diseases: Tay-Sachs, commonly identified with Jewish Americans; cystic fibrosis, often labeled a "Caucasian" disease; and sickle cell disease, widely associated with African Americans. In this captivating account, historians Keith Wailoo and Stephen Pemberton reveal how these diseases―fraught with ethnic and racial meanings for many Americans―became objects of biological fascination and crucibles of social debate. Peering behind the headlines of breakthrough treatments and coming cures, they tell a complex story: about different kinds of suffering and faith, about unequal access to the promises and perils of modern medicine, and about how Americans consume innovation and how they come to believe in, or resist, the notion of imminent medical breakthroughs. With Tay-Sachs, cystic fibrosis, and sickle cell disease as a powerful backdrop, the authors provide a glimpse into a diverse America where racial ideologies, cultural politics, and conflicting beliefs about the power of genetics shape disparate health care expectations and experiences.

"Andy's book will provide hope for those who so desperately need it. These stories of strength and determination are inspiration to keep fighting in our own lives." --Celine Dion"These are tales of warriors who have beaten the odds by making their dreams come true. These are stories that will give you hope. And by buying this book, you will bring us closer to a cure. That is my dream." --Lewis Black"After spending time with cystic fibrosis warriors throughout the country, I've quickly realized they are the toughest and most resilient people I have ever met. The outlook CF warriors have on life is one that everyone should strive to have." --Colton Underwood"These are the stories of CF warriors who refused to succumb to a distressful prognosis, and instead thrived through the power of belief." --Megan Fox

Patient designer Chloe Swientek, a 10-year-old from Portland, Oregon, doesn�t let cystic fibrosis get in the way of doing the things she loves, and her WMNS Air Force 1 design echoes that sentiment. Her shoe features her basketball jersey number on the toebox, and the Swoosh features the word breathe, the genetic mutations that cause Chloe�s CF appear on the tongue, and a pair of lungs are tucked away on the sockliner. Replicated on the outsole is Chloe�s port, an implanted device that makes it easier for her to receive medications. Let�s do amazing things for kids. Your gift will benefit children�s health and well-being at Doernbecher Children�s Hospital.

Patient designer Chloe Swientek, a 10-year-old from Portland, Oregon, doesn�t let cystic fibrosis get in the way of doing the things she loves, and her WMNS Air Force 1 design echoes that sentiment. Her shoe features her basketball jersey number on the toebox, and the Swoosh features the word breathe, the genetic mutations that cause Chloe�s CF appear on the tongue, and a pair of lungs are tucked away on the sockliner. Replicated on the outsole is Chloe�s port, an implanted device that makes it easier for her to receive medications. Let�s do amazing things for kids. Your gift will benefit children�s health and well-being at Doernbecher Children�s Hospital.

Patient designer Chloe Swientek, a 10-year-old from Portland, Oregon, doesn�t let cystic fibrosis get in the way of doing the things she loves, and her WMNS Air Force 1 design echoes that sentiment. Her shoe features her basketball jersey number on the toebox, and the Swoosh features the word breathe, the genetic mutations that cause Chloe�s CF appear on the tongue, and a pair of lungs are tucked away on the sockliner. Replicated on the outsole is Chloe�s port, an implanted device that makes it easier for her to receive medications. Let�s do amazing things for kids. Your gift will benefit children�s health and well-being at Doernbecher Children�s Hospital.

Patient designer Chloe Swientek, a 10-year-old from Portland, Oregon, doesn�t let cystic fibrosis get in the way of doing the things she loves, and her WMNS Air Force 1 design echoes that sentiment. Her shoe features her basketball jersey number on the toebox, and the Swoosh features the word breathe, the genetic mutations that cause Chloe�s CF appear on the tongue, and a pair of lungs are tucked away on the sockliner. Replicated on the outsole is Chloe�s port, an implanted device that makes it easier for her to receive medications. Let�s do amazing things for kids. Your gift will benefit children�s health and well-being at Doernbecher Children�s Hospital.

Patient designer Chloe Swientek, a 10-year-old from Portland, Oregon, doesn�t let cystic fibrosis get in the way of doing the things she loves, and her WMNS Air Force 1 design echoes that sentiment. Her shoe features her basketball jersey number on the toebox, and the Swoosh features the word breathe, the genetic mutations that cause Chloe�s CF appear on the tongue, and a pair of lungs are tucked away on the sockliner. Replicated on the outsole is Chloe�s port, an implanted device that makes it easier for her to receive medications. Let�s do amazing things for kids. Your gift will benefit children�s health and well-being at Doernbecher Children�s Hospital.

The PARI PRONEB Max Nebulizer System is a powerful and dependable device designed to provide efficient and effective nebulized medication delivery for patients who require daily respiratory care. Whether you manage chronic obstructive pulmonary disease (COPD), cystic fibrosis, or other respiratory conditions, the PRONEB Max offers a reliable and convenient solution for your daily nebulization needs.

Patient designer Chloe Swientek, a 10-year-old from Portland, Oregon, doesn�t let cystic fibrosis get in the way of doing the things she loves, and her WMNS Air Force 1 design echoes that sentiment. Her shoe features her basketball jersey number on the toebox, and the Swoosh features the word breathe, the genetic mutations that cause Chloe�s CF appear on the tongue, and a pair of lungs are tucked away on the sockliner. Replicated on the outsole is Chloe�s port, an implanted device that makes it easier for her to receive medications. Let�s do amazing things for kids. Your gift will benefit children�s health and well-being at Doernbecher Children�s Hospital.

Patient designer Chloe Swientek, a 10-year-old from Portland, Oregon, doesn�t let cystic fibrosis get in the way of doing the things she loves, and her WMNS Air Force 1 design echoes that sentiment. Her shoe features her basketball jersey number on the toebox, and the Swoosh features the word breathe, the genetic mutations that cause Chloe�s CF appear on the tongue, and a pair of lungs are tucked away on the sockliner. Replicated on the outsole is Chloe�s port, an implanted device that makes it easier for her to receive medications. Let�s do amazing things for kids. Your gift will benefit children�s health and well-being at Doernbecher Children�s Hospital.

Patient designer Chloe Swientek, a 10-year-old from Portland, Oregon, doesn�t let cystic fibrosis get in the way of doing the things she loves, and her WMNS Air Force 1 design echoes that sentiment. Her shoe features her basketball jersey number on the toebox, and the Swoosh features the word breathe, the genetic mutations that cause Chloe�s CF appear on the tongue, and a pair of lungs are tucked away on the sockliner. Replicated on the outsole is Chloe�s port, an implanted device that makes it easier for her to receive medications. Let�s do amazing things for kids. Your gift will benefit children�s health and well-being at Doernbecher Children�s Hospital.

Patient designer Chloe Swientek, a 10-year-old from Portland, Oregon, doesn�t let cystic fibrosis get in the way of doing the things she loves, and her WMNS Air Force 1 design echoes that sentiment. Her shoe features her basketball jersey number on the toebox, and the Swoosh features the word breathe, the genetic mutations that cause Chloe�s CF appear on the tongue, and a pair of lungs are tucked away on the sockliner. Replicated on the outsole is Chloe�s port, an implanted device that makes it easier for her to receive medications. Let�s do amazing things for kids. Your gift will benefit children�s health and well-being at Doernbecher Children�s Hospital.

Patient designer Chloe Swientek, a 10-year-old from Portland, Oregon, doesn�t let cystic fibrosis get in the way of doing the things she loves, and her WMNS Air Force 1 design echoes that sentiment. Her shoe features her basketball jersey number on the toebox, and the Swoosh features the word breathe, the genetic mutations that cause Chloe�s CF appear on the tongue, and a pair of lungs are tucked away on the sockliner. Replicated on the outsole is Chloe�s port, an implanted device that makes it easier for her to receive medications. Let�s do amazing things for kids. Your gift will benefit children�s health and well-being at Doernbecher Children�s Hospital.

Patient designer Chloe Swientek, a 10-year-old from Portland, Oregon, doesn�t let cystic fibrosis get in the way of doing the things she loves, and her WMNS Air Force 1 design echoes that sentiment. Her shoe features her basketball jersey number on the toebox, and the Swoosh features the word breathe, the genetic mutations that cause Chloe�s CF appear on the tongue, and a pair of lungs are tucked away on the sockliner. Replicated on the outsole is Chloe�s port, an implanted device that makes it easier for her to receive medications. Let�s do amazing things for kids. Your gift will benefit children�s health and well-being at Doernbecher Children�s Hospital.

Patient designer Chloe Swientek, a 10-year-old from Portland, Oregon, doesn�t let cystic fibrosis get in the way of doing the things she loves, and her WMNS Air Force 1 design echoes that sentiment. Her shoe features her basketball jersey number on the toebox, and the Swoosh features the word breathe, the genetic mutations that cause Chloe�s CF appear on the tongue, and a pair of lungs are tucked away on the sockliner. Replicated on the outsole is Chloe�s port, an implanted device that makes it easier for her to receive medications. Let�s do amazing things for kids. Your gift will benefit children�s health and well-being at Doernbecher Children�s Hospital.