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Amyotrophic Lateral Sclerosis (ALS) is a devastating neurodegenerative disorder with a progressive and fatal course, with no known medical therapies that can reverse the disease or halt its progression. Palliative care is the mainstay of disease management, aimed at maximizing Quality Of Life (QOL) for the patient and caregiver. Clinicians caring for patients with ALS need to understand complex psychological issues in the patient and caregiver, including depression, anxiety, hopelessness, and wish for hastened death (physician-assisted suicide). They also need to confront the psychological implications of rapidly advancing genetic research, the impact of cognitive and behavioural dysfunction in a sizable minority of ALS patients, and caregiver burnout. Healthcare providers can optimize care by better understanding not only these factors, but by learning how to facilitate their management with problem-solving, coping techniques, and with psychologically-based approaches such as mindfulness and other non-pharmacological approaches aimed at maximizing QOL. Amyotrophic Lateral Sclerosis: Understanding and Optimizing Quality of Life and Psychological Well-Being provides a detailed review and evaluation of ALS, presented in a comprehensive and integrated fashion. The book achieves this through detailed and up-to-date information about the current state of knowledge in this field. It also offers new insights regarding future directions for research. This book will provide clinicians with a comprehensive description of the psychological aspects of ALS and their management, and incorporates chapters written by recognized scholars in their respective fields.

"ALS is not a curable disease, but it is a treatable one. Treatments are now available that can make a major difference in prolonging life and enhancing the quality of life for people with the disease, and there are treatments for many of the symptoms of ALS that can help ease its burden.Multidisciplinary teams in specialized ALS centers are providing top quality care and comprehensive rehabilitation for persons with ALS. In spite of the progressive nature of this disease and its clear tendency to shorten life, the momentum of research in this disease is expanding dramatically and numerous clinical trials are testing promising new therapies. Our understanding of the basic causes of ALS is expanding gradually. The substantial resources of patient advocacy groups such as the Amyotrophic Lateral Sclerosis Association and Muscular Dystrophy Association provide tremendous help and support for people with ALS and their families. Although the diagnosis of ALS can initially be devastating, the vast majority of people discovering new courage from within to battle this disease and live life with vigor and enthusiasm. The information in this book will prove useful to people with ALS and their families both in managing the disease and living within its limitations."

Amyotrophic Lateral Sclerosis (ALS) or Lou Gehrig's disease is an adult-onset fatal neurodegenerative disease characterised by progressive apoptosis of upper and lower motor neurons in the brain, brainstem and spinal cord. This results in paralysis of bulbar, limb, thoracic and abdominal skeletal muscles, and death within 25 years of diagnosis. In this book, the authors present current research on the symptoms, treatment and prognosis of ALS. Topics include audiological profiles and hearing loss in ALS patients; the role of the lipid transcription factor and sterol regulatory element binding protein 1 (SREBP1) in ALS; molecular targeted therapy for ALS; physical and communication disabilities in ALS; psychological interventions for ALS patients and their caregivers; and a study of ALS progression and propagation.

Amyotrophic Lateral Sclerosis (ALS) is a devastating neurodegenerative disorder with a progressive and fatal course, with no known medical therapies that can reverse the disease or halt its progression. Palliative care is the mainstay of disease management, aimed at maximizing Quality Of Life (QOL) for the patient and caregiver. Clinicians caring for patients with ALS need to understand complex psychological issues in the patient and caregiver, including depression, anxiety, hopelessness, and wish for hastened death (physician-assisted suicide). They also need to confront the psychological implications of rapidly advancing genetic research, the impact of cognitive and behavioural dysfunction in a sizable minority of ALS patients, and caregiver burnout. Healthcare providers can optimize care by better understanding not only these factors, but by learning how to facilitate their management with problem-solving, coping techniques, and with psychologically-based approaches such as mindfulness and other non-pharmacological approaches aimed at maximizing QOL. Amyotrophic Lateral Sclerosis: Understanding and Optimizing Quality of Life and Psychological Well-Being provides a detailed review and evaluation of ALS, presented in a comprehensive and integrated fashion. The book achieves this through detailed and up-to-date information about the current state of knowledge in this field. It also offers new insights regarding future directions for research. This book will provide clinicians with a comprehensive description of the psychological aspects of ALS and their management, and incorporates chapters written by recognized scholars in their respective fields.

ALS, also known as Lou Gehrig's disease, cannot be cured but it can be treated. A great deal can be done to treat the symptoms of ALS, to improve an individual's quality of life, and to help families, caregivers, and loved ones to cope with the disease. This extensively revised and rewritten new edition of the bestselling Amyotrophic Lateral Sclerosis: A Guide For Patients and Families addresses all of those needs, and brings up-to-date important information to those living with the reality of ALS. The book is completely revised throughout and contains NEW information on: Recently developed approaches to treating ALS symptoms Use of non-invasive ventilators Multidisciplinary team care New guidelines being developed by the American Academy of Neurology for patients with ALS The use of riluzole (Rilutek) to treat ALS Amyotrophic Lateral Sclerosis covers every aspect of the management of ALS, from clinical features of the disease, to diagnosis, to an overview of symptom management. Major sections deal with medical and rehabilitative management, living with ALS, managing advanced disease, end-of-life issues, and resources that can provide support and assistance in this time of need."

Amyotrophic Lateral Sclerosis (ALS) or Lou Gehrig's disease is an adult-onset fatal neurodegenerative disease characterised by progressive apoptosis of upper and lower motor neurons in the brain, brainstem and spinal cord. This results in paralysis of bulbar, limb, thoracic and abdominal skeletal muscles, and death within 25 years of diagnosis. In this book, the authors present current research on the symptoms, treatment and prognosis of ALS. Topics include audiological profiles and hearing loss in ALS patients; the role of the lipid transcription factor and sterol regulatory element binding protein 1 (SREBP1) in ALS; molecular targeted therapy for ALS; physical and communication disabilities in ALS; psychological interventions for ALS patients and their caregivers; and a study of ALS progression and propagation.

"Do you want an interactive workbook that will support you in following THE raw vegan healing protocol that was intended for our species? Then this book is for you!" This is a strategically composed workbook which contains invaluable information, a series of tips, pointers, and protocols which are geared towards healing you naturally. Through years of experience, we learnt a vast amount about human healing and we wanted to deliver this information to you in a practical and applicable way. With the help of this workbook companion, you will now be able to achieve your individual health goals easily. It is now your turn to experience instant positive changes in your life and health. Good luck on your journey.

What does it mean to be sick of amyotrophic lateral sclerosis? For the public this evokes paralysis and death in the short term. But there are slow progressions and other rapids, and no one really knows why. Why does this disease start in only a few areas, then progress slowly? Why are some motor neurons, such as eye or bowel motions, usually preserved? And as is the case for all rare diseases, there are few doctors who have a deep knowledge of ALS, which is a disease of rare complexity. In addition, the coming of drugs on the market, each targeted on one form of the disease but ineffective for others, requires an information effort that is not trivial. For all people with ALS, it is of utmost importance to know if it is possible to get treatment that could improve their condition, give them time to see their grandchildren graduate, or maybe even to cure them of this horrible disease. We are having an interesting moment in ALS research, where there seems to be an effervescence of results that gives hope that a more effective treatment without too many side effects will be available in the next few years. This book traces the main steps of ALS research over the last 30 years, describes new drugs in clinical trials, provides insight into future treatments that may block the disease, and even heal completely in a more distant future. It is also the report of astonishment of an observer outside the field.

Navigating Life with Amyotrophic Lateral Sclerosis provides accessible, comprehensive, and up-to-date information about the challenges patients, family members, and caregivers face when confronted by ALS, a disease that affects approximately 5,600 Americans every year, with as many as 30,000 people managing the disease at any given time. ALS is a difficult disease for the patient and is also challenging for the caregiver and family as there are many questions, issues relating to care, and problems to manage. This guide covers all aspects of managing ALS, from the onset of symptoms, diagnosis, treatments, and coping strategies, to the use of home health care or hospice, and new research in the field. The book also sheds lights on difficult topics, such as end-of-life care and managing legal affairs. Navigating Life with Amyotrophic Lateral Sclerosis is unique because it covers two perspectives: one author is a neurologist with 30 years of experience treating ALS patients, and the other author experienced first-hand the issues in providing care for a parent with ALS. Formatted in a question-and-answer style, peppered throughout with patient stories, and with sections devoted to family members and caregivers, this compassionate resource provides guidance to those seeking to understand how to live with this disease.

A former sociology professor suffering from amyotrophic lateral sclerosis, an incurable, progressive disease, shares his thoughts on his approaching death, the art of coming to terms with one's mortality, and the neccesity to live as fully as possible in the time remaining.

Susan Spencer-Wendel’s Until I Say Good-Bye: My Year of Living with Joy is a moving and inspirational memoir by a woman who makes the most of her final days after discovering she has amyotrophic lateral sclerosis (ALS).After Spencer-Wendel, a celebrated journalist at the Palm Beach Post, learns of her diagnosis of ALS, more commonly known as Lou Gehrig’s disease, she embarks on several adventures, traveling toseveral countries and sharing special experiences with loved ones. One trip takes Spencer-Wendel and her fourteen-year-old daughter, Marina, to New York City’s Kleinfeld’s Bridal to shop for Marina’s future wedding dress—an occasion that Susan knows she will never see.Co-written with Bret Witter, Until I Say Good-Bye is Spencer-Wendel’s account of living a full life with humor, courage, and love, but also accepting death with grace and dignity. It’s a celebration of life, a look into the face of death, and the effort we must make to show the people that we love and care about how very much they mean to us.

Gabby adores her Pop-Pop; they have so much fun together! But lately, Gabby has been wondering why Pop-Pop cannot do all the things other grandpas can do, like taking her fishing or going swimming with her. After talking to her mother, Gabby learns that Pop-Pop has Amyotrophic Lateral Sclerosis (ALS), a disease that weakens his muscles and makes it hard for him to move around. Despite Pop-Pop’s ALS, Gabby and her brother Brennan learn to create their own special memories with their grandfather, starting with walking like the penguins at the zoo. Walk Like Penguins is a sweet and informative book for children with friends or relatives who have ALS. Through Gabby, Brennan’s, and Pop-Pop’s journey, your child will learn that there are plenty of activities ideal for someone who has limitations—and that not all memories need to fit the cookie-cutter mold. All proceeds from the book are being donated to various ALS organizations specializing in research, treatments, equipment for patients, and a cure.

This biography traces Gehrig’s life, from childhood through his illustrious career with the Yankees to his struggle with amyotrophic lateral sclerosis and his tragic death at age thirty-seven. Expressive illustrations capture the strength, modesty, and dignity for which this remarkable man will always be remembered. “Readers will feel good after reading this biography--and maybe even inspired to start measuring themselves against Gehrig’s standard.”--Kirkus Reviews

The book covers acupuncture and Chinese herbal treatment of more than 65 modern Western diseases, many of which have never been discussed in the Chinese medical literature. A partial listing of some of the diseases covered include: allergic rhinitis; amyotrophic lateral sclerosis; Alzheimers disease; benign prostatic hypertrophy; bronchial asthma; carpal tunnel syndrome; cervical spondylosis; chronic active hepatitis; and many more.

Few scientists are as recognizable as Stephen Hawking. Despite having Amyotrophic Lateral Sclerosis (Lou Gehrig's Disease)―an affliction that many experts expected to have killed him decades ago―Hawking remains a vital and influential voice in the scientific community. One of the leading cosmologists studying the celestial phenomenon known as black holes, Hawking has also led the way in popularizing science with his best-selling work A Brief History of Time. This biography of Hawking, written by a physicist, provides an accessible introduction to the life and work of an inspirational figure.

Gabby adores her Pop-Pop; they have so much fun together! But lately, Gabby has been wondering why Pop-Pop cannot do all the things other grandpas can do, like taking her fishing or going swimming with her. After talking to her mother, Gabby learns that Pop-Pop has Amyotrophic Lateral Sclerosis (ALS), a disease that weakens his muscles and makes it hard for him to move around. Despite Pop-Pop’s ALS, Gabby and her brother Brennan learn to create their own special memories with their grandfather, starting with walking like the penguins at the zoo. Walk Like Penguins is a sweet and informative book for children with friends or relatives who have ALS. Through Gabby, Brennan’s, and Pop-Pop’s journey, your child will learn that there are plenty of activities ideal for someone who has limitations—and that not all memories need to fit the cookie-cutter mold. All proceeds from the book are being donated to various ALS organizations specializing in research, treatments, equipment for patients, and a cure.

Lou Gehrig's widow recalls their life together, the six years of travel and excitement before the diagnosis of Lou's amyotrophic lateral sclerosis and the subsequent two years of fears and courage

Lou Gehrig's widow recalls their life together, the six years of travel and excitement before the diagnosis of Lou's amyotrophic lateral sclerosis and the subsequent two years of fears and courage

2010 had been a very good year for Bruce H. Kramer. But what began as a floppy foot and leg weakness led to a shattering diagnosis: he had amyotrophic lateral sclerosis. ALS is a cruel, unrelenting neurodegenerative disease where the body’s muscles slowly weaken, including those used to move, swallow, talk, and ultimately breathe. There is no cure; ALS is a death sentence.When death is a constant companion, sitting too closely beside you at the dinner table, coloring your thoughts and feelings and words, your outlook on life is utterly transformed. The perspective and insights offered in We Know How This Ends reveal this daily reality and inspire a way forward for anyone who has suffered major loss and for anyone who surely will. Rather than wallowing in sadness and bitterness, anger and denial, Kramer accepted the crushing diagnosis. The educator and musician recognized that if he wanted a meaningful life, embracing his imminent death was his only viable option. His decision was the foundation for profound, personal reflection and growth, even as his body weakened, and inspired Kramer to share and teach the lessons he was learning from ALS about how to live as fully as possible, even in the midst of devastating grief.At the same time Kramer was diagnosed, broadcast journalist Cathy Wurzer was struggling with her own losses, especially the slow descent of her father into the bewildering world of dementia. Mutual friends put this unlikely pair—journalist and educator—together, and the serendipitous result has been a series of remarkable broadcast conversations, a deep friendship, and now this book.Written with wisdom, genuine humor, and down-to-earth observations, We Know How This Ends is far more than a memoir. It is a dignified, courageous, and unflinching look at how acceptance of loss and inevitable death can lead us all to a more meaningful and fulfilling life.

The book covers acupuncture and Chinese herbal treatment of more than 65 modern Western diseases, many of which have never been discussed in the Chinese medical literature. A partial listing of some of the diseases covered include: allergic rhinitis; amyotrophic lateral sclerosis; Alzheimers disease; benign prostatic hypertrophy; bronchial asthma; carpal tunnel syndrome; cervical spondylosis; chronic active hepatitis; and many more.